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MULTIPLE SCLEROSIS, CFIDS (CHRONIC FATIGUE IMMUNE DYFECENY
SYNDROME AND FIBROMYALGIA
A SUBJECTIVE OVERVIEW AND
A SCIENTIFIC, ALLOPATHIC AND HOLLISTIC APPROACH TO TREATMENT
Paul T. Burke, M. Ed.
|My nervous and immune
problems started long before I was ever diagnosed with Multiple
Sclerosis in the winter of 1994-95. In fact just about as far back as I
can remember I had some problems with my nervous system, immune system
and gut (Intestines).
Growing up, not knowing it then, I had what is
called a “kyphotic” T-spine and what is known as Pectus
Carinatum, which are both congenital defects. “Kyphosis” is
of the T-Spine and L-spine. The T-spine bows outwardly too far, causing
the L-spine to curve inward more than normal. Pectus Carinatum is also
called “pigeon breast” and/or “chicken breast.”
It is a deformity of the chest characterized by a protrusion of the
sternum and ribs. Both of these congenital problems caused various
symptoms (and shame) because I was never treated for either as a child
growing up. With a very, big and rugged father, and a strict and
somewhat naïve mother, for neither thought either to be of major
medical concern. I started lifting weights and doing thousands of
weighted Roman Chair sit ups, which covered my outwardly pointed
sternum; and, I made my back so thick and wide, no one ever again made
fun of, or looked at my spine twice again.
Not knowing either caused internal problems until I
played football and ran Track and Cross-Country in High School, most of
the problems I learned to manage on my own. The sternum problem,
although hidden by my senior year, caused shortness of breath and heart
flutters, with occasional black-outs. I soon realized that training
with weights and walking long distances (and swimming and doing tough,
manual labor) made me feel much better.
By the time I was in my twenties, I was British and
UK (and European) arm-wrestling Champion (from 1978-1980) being
stationed at RAF Woodbridge in the US Air Force. I had also won my
first bodybuilding contest in London, England, “The Mr.
Titan,” in 1981. I did all of this without ever using anabolic
By the time that I had returned to the US, all of
the guys that I left who were training with weights had become quite
strong and quite large. They were obviously all using anabolic
steroids. I had read plenty about them, even had a script from a US Air
Force MD. I finally started using them in late 1981. I immediately felt
the effects and they were all positive. I gained lots of muscle and
size, but those four years being out of the US had me trying to play
catch-up with the rest of the guys who had started just after I had
left the US for England.
I did not win another contest until winning my
weight class in the 1985 Mr. Empire State Contest in NYC. By then, I
weighed 229 pounds on stage, which for the time was quite large.
“I walked around” (1985-86) at a weight between 245-260
pounds, depending on how much I ate on a “cheat day.” I can
be honest and say that I used one shot of 100 mg Deca Durabolin a week,
and three Anavar a day—that was it. I got sick using stronger
steroids at higher doses, even at lower doses. I trained probably
heavier than most bodybuilders, especially with arms, back, and even
legs. I felt fantastic and went on to placing second-runner-up in both
Jr. Mr. Universe and USA Contests.
I stopped using in 1986 and then went on the win
several contest clean, without steroids. (Some of the titles that I
won: Height Class winner, 1992, Drug-tested Mr. New England; Class
winner, 1992 Drug-tested Mr. Continental USA; 1992 Drug-tested USA, 2nd
place and a number of others). My career as a competitive bodybuilder
ended when I started to train Bill Koch and his America’s Cup
Team. I was diagnosed with MS while in San Diego during Koch’s
defense of the America’s Cup in 1994-95.
I beat the damn disease for a while and I was again
in superb shape between the years 1997-2000. After earning a large
amount of money with my physique as a model and actor in NYC during
those years, I was severely injured by a rupturing my accessory nerve,
killing all of the muscles on the right side of my body—that has
never fully healed, but a year or so ago, I was able to start training
normally again. I had been using rubber cables and lying on the floor
to train for about seven years before I could actually lie on a bench
or use free-weights, just over a year ago. (Just to make the
connection, the accessory nerve is attached at the exact place where my
MS lesions are and the assumption is that the nerve rupture and or tore
because of a weakness in my spinal area (C-2, C-4) that must have
weakened that nerve of my dominant side which froze and was
Now that the MS has returned and seems determined to
stay, I have utilized a variety of methods to at least be functional
and get quite a bit better. I have used this protocol on others, with
mixed results, but almost always getting people better to some degree.
Some feel 100% better while others say anywhere from 25-50% better. It
is not that costly, but does take time, patience, testing and my own
way of viewing the results.
CFIDS (Chronic Fatigue Immune Deficiency),
Fibromyalgia and MS
All seem to have at least ten or twelve things in common: Fatigue,
pain, food allergies, sleeplessness, inability to exercise, sensitivity
to chemicals, adrenal problems, Hypothalamus, Pituitary, Adrenal Axis
problems, Metabolic and Thyroid Issues; Hormonal problems;
musculoskeletal problems; Tremors, and on and on the list
WHAT TESTS AND TREATMENTS SEEM TO WORK FOR THESE DISEASES?
MS, Fibromyalgia (and/or CFIDS) are all based on
three rather large fields of study and two rather obscure knowledge and
empirical-based practices that border on non-medical. Just
briefly, for sure, each case is subjective, genetic, dietary
(micro and macro)
anaerobic/aerobic/mitochondria/ATP, Neurological, Allergenic,
Hormonal, Thyroid, and all around Endocrine-logical (or the
finding of the underlying hypothalamus feedback problem).
Lastly, it is psychopathic--and I don't mean
that someone with this disease is crazy, or it is "just a matter of
depression"; rather, often, someone has carried a tremendous amount of
PTSD (Post Traumatic Stress Syndrome) with them, unconsciously for
years, without any real methodology for getting help.
Freud's book and practice based on Catharsis has
merit, but I truly believe the great French Neurologist from the 19th
Century, Jean-Martin Charcot (who had Freud as a pupil) was much
closer to understanding the unconscious mind than Freud. Yung
understood this “unconscious mind” better too, but he (as
one of Freud's pupils) spent most of his time on what he called
"archetypes" of the dream stage, which is not the ability to tap into
awake state unconscious mind (and he was very much into
believing "god" had an influence in one's faith to
recover—and that is open for debate either way, but not a point
that I spend much time thinking about, nor talking or writing about
because what works for one does not work for another in the case of
"god." I can say strongly, without question, that one has to put faith
in themselves and if one wants to call that faith in god, so be it. I
do know prayer helps and as a pragmatist I am not sure if that is a
meditative state helping the CNS (Central Nervous System) or that is an
actual fact of faith. I don't go to that place for obvious
reasons, but if it helps, it helps.
In a nut-shell, I generally go down these paths with someone with MS
and/or Fibromyalgia (CFIDS).
1. First, as with weight trainees and bodybuilding clients, as well as
those getting in shape, I have a very specific questionnaire that tells
me what that person "is made of," looks like, what each joint and bone
look like through an elaborate system of measurements and back-life
information--so too do I do have an extended questionnaire for
MS and CFIDS/Fibromyalgia "clients" albeit, a lot different
questionnaire. (I do have graduates Degree in Health (Ed.), but I
am not a doctor (MD), so I cannot say really say or write the word,
"patient," although metaphorically, that is what anyone under my
instruction and guidance will become, but I don't suggest drugs,
albeit, I will occasionally recommend someone read a study, ask them to
bring that study and other information to their MD and hope that
he/she will prescribe it. (By the way Lyrica, is a time-release form of
Neurontin. Neurontin and Lyrica are very nervous-system addictive, they
also affect the brain. I don't advise coming down quite yet, but if you
want to go through with the program, at sometime you might want to
taper off slowly so we can utilize other methods and know how
things are changing. Pain is uncomfortable, but knowing what causes the
pain is more important than bandaging it.)
2. Food and Chemical Sensitivities and Food Allergies. This is
often a major factor. I work with a lab here in Massachusetts that
performs what is called IgG Lymphocyte ELISA tests, with over 300 foods
and 100 household chemicals. It is a simple blood test, but often I
have to call the MD and explain what it does because MD's are taught
about drugs, not looking for clues as to causes of disease. They also
have very little background in nutrition and will not (in all
probability) have this blood test in their documents, orders and/or
3. Nutrition: This is obvious, but which nutrition program? In the age
of "diet books," most people miss the point. After you read my book,
Paul Burke’s Neo-Dieter’s Handbook, we will talk about this
as far as what you should or should not be eating.
4. Exercise: What to do? How much? When to do what? I answer each one
of these based on a variety of daily tests of the CNS (Central Nervous
System--which one is done with a specific digital tester);
also heart rate at three times of the day; tongue color and
texture, body-temp at three different times during the day, and body
musculoskeletal designation; composition, body-fat% etc. Also under
this category would be suggestions for Myofascia Trigger Point Therapy,
ART (Active Release Therapy), soothing massage, etc.
5. Hypothalamus, Adrenal, Pituitary (Thyroid, Penal gland, Testes,
This gets to be very difficult to interpret. First, the adrenals are
tested, but not with the standard test that most
(MD's/DC's) use; this one is an 8-times per 24 hour collection of
saliva. In this test, a multitude of chemicals are tested for, not just
adrenaline/cortisol. I explain this in more detail in the literature
that comes with the program.
6. Hormones: Almost everyone with CFIDS/Fibromyalgia have hormonal
problems—low testosterone, high estrogen, no estrogen, etc. There
are specific tests for all the hormone levels, hormonal pathways and
their precursors such as DHEA.
7. Genetics: It may sound odd, but certain bone (mostly T and L-spinal
Shapes) are indicative of CFIDS and Fibromyalgia, and as told in my
case (and others that I have seen), MS. I have a measuring device for
this, or photos work too. The other genetic components consist of
8. The Unconscious Mind: This is a big one and few even consider it.
People might say, learn to meditate, learn to relax, take bio-feedback,
go see a psychotherapist, etc. Almost all don't work. Why? Because
people with nerve damage and pain almost always have two or three of
the top components and this one--and this one is the tough one, the one
no one wants to tackle because it is unbelievably hard to know what to
do about this part of the mind. (Here we are back to Charcot, the 19th
Century French Neurologist). I am studying everything that he and his
contemporaries have written. Seriously believing that Freud dropped the
ball on investigating the unconscious mind, for the ease and simplicity
of "psychotherapist coach." I think Charcot was way ahead of his
time. Able to bring women who were in institutions "locked" in an
unconscious state of "hysteria" come to life by hypnotherapy,
and I am convinced that the unconscious mind plays a huge role in
how we get sick and how we get better. This is something that I would
have to do in person and it is very expensive; however, this is the
final door to go down if necessary and often times not needed. I don't
believe in these people who call themselves hypnotists who claim to be
able to stop you from smoking or drinking or any of that nonsense. I do
however, believe that third layer unconsciousness is possible and can
often shake someone free of carried trauma--it can also be very tough
to get someone that deep without a lot of back-life historical facts
and time, time, and more time.
So, all "Neurological" diseases usually are
multifaceted in that their origins are fairly consistent in
pathology--in other words, within those seven areas, usually five to
seven unlock the door towards getting better, but which ones is hard to
know until one tries.
I will be sending your books tomorrow and then you can decide on
whether you want to get started with your wife or wait is up to both of
you--obviously. I am not really busy now, although I am writing my
third book and have a number of clients and (Patients); however, the
summer gets people onto vacations and that frees me up with more
time--for the next few months, then I am swamped.
I hope that I have helped shed some light on these subjects and I
certainly would like to help, knowing, that the path toward healing is
long and can often be like a roller-coaster, unless something sticks
out right away. I do this over the phone and/or via Internet. I
suggest both, but not until I have all the information that I have to
have. The way it would work is I would send you a special invoice for
$139.00 and that very lengthy questionnaire that I wrote of above. You
would then have to fill out the questionnaire and return it to me. Then
I go to work. Once I look over everything, then I make suggestions,
some are allopathic and some are natural. We then, after I have looked
at all the tests and answers to the questionnaire, talk on the phone at
$2.00 per minute with a fifteen minute minimum.
I wish you the best of health.
Paul T. Burke, M. Ed., Owner, Paul Burke
Begin by sending me the Invoice and Questionnaire: $139.00 for
reviewing your tests and other questionnaire answers.
I would like to make a telephone consultation: $2.00 per minute, 15
I would like to purchase both: $199.00—with a limit of 30 minutes
over the telephone.